tag:blogger.com,1999:blog-6177432865376147686.post831842157691292189..comments2023-03-26T03:37:51.226-04:00Comments on Diabetes Blog: BETA BUDDIES: AlwaysAnonymoushttp://www.blogger.com/profile/00895126112651188056noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-6177432865376147686.post-54566464946584937242011-03-10T12:35:09.446-05:002011-03-10T12:35:09.446-05:00Thanks for expressing so well for all of us....Thanks for expressing so well for all of us....Five Bears A-Blogginghttps://www.blogger.com/profile/11797241538907067302noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-85891790180900500692011-03-08T23:38:45.796-05:002011-03-08T23:38:45.796-05:00Such a great post! I feel this way so much! All th...Such a great post! I feel this way so much! All the things I used to do before Diabetes took up half my brain.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-77979230969981408432011-03-07T10:42:11.517-05:002011-03-07T10:42:11.517-05:00Oh honey, I am sending you a huge hug!!!Oh honey, I am sending you a huge hug!!!Karenhttps://www.blogger.com/profile/03836215891806148229noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-49862880834439612952011-03-06T01:14:07.682-05:002011-03-06T01:14:07.682-05:004 years, 6 months, 5 days ago I was diagnosed with...4 years, 6 months, 5 days ago I was diagnosed with diabetes.<br /><br />Two and a half years ago, I started on a journey of diagnoses. First I had weight loss and a kidney scare. That really scared me. Then I had polycythemia. Gallstones, which I thought was awful until I was told that we might be postponing necessary surgery because of... Thyrotoxicity with a bunch of incorrect presumptive diagnoses including cancer. <br />By the time I was diagnosed with neuropathy, I didn't even care. <br />I've been diagnosed with just as many new things in the year and a half since.<br /><br />I am way more mellow about blood sugar now. I'm plain old more mellow. I feel like being diagnosed with diabetes made me feel like the other shoe was always about to drop. Then it dropped, or at least gave the appearance of dropping. I got to work out all of my fears and be scared for a while. I cried for a month in fear for my kidneys. I came to terms with the fact that there are some things I don't know and I asked my doctor to not tell me them (such as my current kidney function).Jonahhttps://www.blogger.com/profile/07961973384914389626noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-35130989337013781172011-03-06T00:17:52.619-05:002011-03-06T00:17:52.619-05:00Oh goodness, I will definitely be sharing this wit...Oh goodness, I will definitely be sharing this with others. I admire you and have learned so much from your blog (and am always entertained), and it's so comforting to me when I see that I'm not the only one feeling the way you described here. It always looks like the other Type 1 moms I know are just taking it all in stride like it's no big deal...leaves me wondering if something's wrong with me or I'm weak. We're having some serious burnout issues over here and I so needed to read this and know that I'm not alone in how I feel about D - and all that goes with it. Well said, Reyna. Thanks.Anonymoushttps://www.blogger.com/profile/00822903350650073655noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-57853564004013600352011-03-05T17:33:48.637-05:002011-03-05T17:33:48.637-05:00I'm a bit late to the table here and can'...I'm a bit late to the table here and can't really add much other than, yes, it's never, ever ending and hard, hard , hard. BUT how did anyone do it sanely without this fantastic support network we all have in each other? You are a kind, honest, amazing person and I am hugely grateful to have you in my life. We all have these feelings but in all honesty who can sustain them 24/7? Living in the moment with our kids is the best relief. Life must be lived and joy found.<br />If I ever get to Vermont, I'll be calling in and challenging you to a swearing competition. You'll win, of course, but it'll be fun!<br />Hugs and love to you.Jules https://www.blogger.com/profile/01372324417732567461noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-72312689568785330552011-03-05T09:38:36.269-05:002011-03-05T09:38:36.269-05:00Sweet Reyna - - - as if I was no crying enough fro...Sweet Reyna - - - as if I was no crying enough from your post I then read the comment from your sweet mom!! This is such a great post --- I feel like it came right out of my heart on to your blog. So many of us feel this way and you put it out there perfectly.LaLahttps://www.blogger.com/profile/17278430665049354027noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-53271386709796757792011-03-05T03:05:53.320-05:002011-03-05T03:05:53.320-05:00I awoke to this post this morning. You inspire. ...I awoke to this post this morning. You inspire. I see that you have an awesome sense of perspective, both short term and long term. You balance yourself with reality and laughter. You are doing a wonderful service to us, the D community, and to your lucky family. Thankyouxx.Juleshttps://www.blogger.com/profile/15199571808950027287noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-49899831138939383812011-03-05T00:48:43.294-05:002011-03-05T00:48:43.294-05:00You're reading my mind again. Love you!You're reading my mind again. Love you!Heidi / D-Taleshttps://www.blogger.com/profile/16203534776909805264noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-38489793112744998122011-03-04T22:11:10.968-05:002011-03-04T22:11:10.968-05:00Perfectly said! And I love Meri's comment: Fak...Perfectly said! And I love Meri's comment: Fake it till you make it...been there done that!<br />It's definitely the unrelenting care requirements of D that wear us down and burn us out! I just wish people (even some of my extended family) "got it" and I didn't get that feeling that they think I'm just being dramatic...ugh!Michellehttps://www.blogger.com/profile/05076913678173752057noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-24660884829984000642011-03-04T21:51:20.923-05:002011-03-04T21:51:20.923-05:00You are such an awesome human being Reyna. <3You are such an awesome human being Reyna. <3sky0138https://www.blogger.com/profile/02085600646732450220noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-52507263389120551942011-03-04T21:29:46.588-05:002011-03-04T21:29:46.588-05:00Gosh reyna:
After reading your post, I just wish I...Gosh reyna:<br />After reading your post, I just wish I could meet you in person and hang out awhile. Sometimes you just need a friend in person with the same problems to hang out with and know that you're not alone! Love you!Amy@Diapeepeeshttps://www.blogger.com/profile/10155562802806704713noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-59007776668731580272011-03-04T20:41:16.836-05:002011-03-04T20:41:16.836-05:00I'm so glad I found you and your blog! Said p...I'm so glad I found you and your blog! Said perfectly! I want to eat it for supper and spit it out every time someone asks me if "Ellie's numbers have evened out yet?". Drained of all everything...sucking it up with a small smile every day! Love you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-44101116724163227572011-03-04T20:19:41.952-05:002011-03-04T20:19:41.952-05:00My daughter-in-law sent me to this blog.
I read a...My daughter-in-law sent me to this blog. <br />I read and re-read it. <br />I want to get it. <br />I know the nights are sleepless, but I also know they are not sleepless like a fever that will break. Not like relief that is just around the corner, even though it is, like a minute in the storm that you catch before the next wave hits. <br />This is how it is.<br />One little breather at a time.<br />Learning to take what you can get.<br />Because this does not break. <br />My prayer is that you don't let it break you. <br />I see you brave in the face of a daunting task. The physical, emotional, psychological weight of it must be crushing. <br />I pray that it does not crush you.<br /> A wise man once asked me: Do you really think that God would put the weight of an elephant onto the back of an ant? {Does this question help?}<br />Is your strength for this, or because of it, and does it matter? <br />You can do this, you are doing this <br />You are all like great waxed wonders flying right smack into the friggen face of the sun and not melting. <br />I love you all. <br />I praise you all. <br />I pray for you all and for your children and, especially, I pray for laughter - A kind of Pancreatic Prance Party you can all virtually attend that gives you relief, that gives you all perspective, that strengthens your strength, and allows you to let the proverbial "Train" to carry the weight of the burden all at the same time.<br />Like weather vanes, moving in the wind, telling directions, watching, waiting, something, some enormity of love calls you, watches over you, moves through you. Your sub-atomic parenting is sending out waves you do not even know about, waves that are washing against the shores of distant hearts, dancing in the hearts of close ones, beating in the hearts of bolus and needle and scale of un-measurability.<br />Be blessed in all your blessings.<br />Take heart in all your heart.<br />Take measure in all your measurements.<br />The roses you can allow yourself to smell are there between all the hideous thorns and they will bloom because of you or in spite of you.<br />God bless<br />GannyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-37968023256518532922011-03-04T18:08:43.171-05:002011-03-04T18:08:43.171-05:00it is what we all are feeling some of us just don&...it is what we all are feeling some of us just don't know how to put it in words...you always do...my heart breaks every day for my beautiful daughter and I worry for her future...when I can't be there...I worry and grieve all the time..it has made me a different person this diagnosis and our family has been changed forever...it is just very sad....I wish it never ever entered our lives....how different we would all be....imagine again sleeping through the night...I can't remember that feeling of waking in the morning and feeling rested...the simplest of things. Thank you Reyna for being the voice for so many.donnahttps://www.blogger.com/profile/10887659438459719416noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-18319700604775024302011-03-04T17:02:12.637-05:002011-03-04T17:02:12.637-05:00You so "get it". Sometimes I think pare...You so "get it". Sometimes I think parents of diabetic children have it harder than their kids. I remember arguing with my dad as a teenager because I was having a hard time with diabetes and felt no one else at home was suffering as much. He broke down stating that he didn't doubt I was suffering a lot but that I didn't understand he had it hard as well. He had two diabetic daughters to worry about (and three others to give attention to). I didn't understand why that would be such a big deal until recently when I had my own kids. My heart weighs very very heavy for all of you parents. I've come to a much nicer place with diabetes where I feel pretty healthy and happy 99% of the time (and I had a lot of 10%+ A1c's growing up). As a result, my parents don't feel as overwhelmed as they used to. I get the feeling with a mom like you, Joe (and Bridget) are going to be happy, healthy, and awesome adults.Sysyhttp://thegirlsguidetodiabetes.comnoreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-82276866115027837462011-03-04T16:05:00.183-05:002011-03-04T16:05:00.183-05:00It was pointed out to me that we all seem to be in...It was pointed out to me that we all seem to be in the same kind of funk lately here in D land. Thank goodness these blogs exist to help all of help each other.<br />24/7/365.......we should tattoo this in unity! Zombie mom's unite!!!<br /><br />Chin up Reyna....you're awesome at this. :):) Traciehttps://www.blogger.com/profile/01007765987473563241noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-57040921088067768502011-03-04T15:52:23.774-05:002011-03-04T15:52:23.774-05:00You said it perfectly... Love you!You said it perfectly... Love you!Lorahttps://www.blogger.com/profile/07192247387107228743noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-6186573123920039132011-03-04T15:23:01.430-05:002011-03-04T15:23:01.430-05:00Oh Reyna! I don't know which made me cry hard...Oh Reyna! I don't know which made me cry harder...your beautiful post (AMAZING!!!) or the comments from your mom and your sister!<br /><br />I am so honored to know you and so grateful to have you on this journey with me. Don't know what I'd do with you!Mistyhttps://www.blogger.com/profile/17818861980843167968noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-79654265436295118402011-03-04T14:00:37.290-05:002011-03-04T14:00:37.290-05:00I admire you sweet Reyna. I am with you on the jou...I admire you sweet Reyna. I am with you on the journey, along with so many others. I hope that our friendship keeps you afloat sometimes. Hang on when the going gets rough and the waves get too high. It's isn't fair, it isn't right, it just isn't...but I DO know, in so many, many ways, that you have the strength, the fortitude, the determination and the guts to do it. Onward sister.<br /><br />Same samePennyhttps://www.blogger.com/profile/11137611120689810820noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-61358617834871084062011-03-04T13:12:52.375-05:002011-03-04T13:12:52.375-05:00Oh man Peyn. You know what else is tough? Lovin...Oh man Peyn. You know what else is tough? Loving your sister to pieces and know and watch her struggle and not only not be able to help but to know you dont even grasp the depths of what she and her family are going through. You are amazing. Life just isnt fare sometimes. But you are one AMAZING woman and mother and I admire the hell out of you.tarahttps://www.blogger.com/profile/15676565263093688575noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-62403051052856138682011-03-04T12:48:42.111-05:002011-03-04T12:48:42.111-05:00Ahhh, great post! I have been feeling this way a l...Ahhh, great post! I have been feeling this way a lot MORE lately, so everything you said hit home for me x2. It does take endless energy and planning. It is constantly exhausting. I had a crummy day of up & down blood sugars yesterday and I am dealing with the newness of the CGM, so it all hit me hard yesterday and I texted my boyfriend, "I just want it to go away!!" Sometimes I feel like a 5 year old whining and complaining, but I think those feelings need to be vented and addressed, AND I think they are valid. Even though my family and friends listen to me vent, I know they cannot truly get it. They want to, but there's just so much involved that they can't understand. It's not just the technical part of tweaking, but it's the emotional and psychological part of it as well. You're definitely not alone, but I know it can feel thay sometimes within your own situation. Keep your head up--you are amaaaaazing!Valeriehttps://www.blogger.com/profile/17032040751678678327noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-43160904152457672352011-03-04T12:43:14.216-05:002011-03-04T12:43:14.216-05:00Oh my. This was supposed to be a "no crying&...Oh my. This was supposed to be a "no crying" day at work for me.<br /><br />SAME!Donnahttps://www.blogger.com/profile/07096733957672343933noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-39071994265265312682011-03-04T12:28:22.395-05:002011-03-04T12:28:22.395-05:00"The sad thing is, many people don't get ..."The sad thing is, many people don't get that the impact of 24/7/365 meticulousness and care can fuck with you. It saps your energy. It leaves you feeling depleted."<br />That is the gut of it all for me...I feel like I have this wonderful view from watching TJ knowing that he honestly doesn't feel like d is a huge deal, the way he just plugs along never complaining but being honest about how difficult d can be at times..so I think I know that someday Isaac will be there at a similar place as TJ. Until then I don't think that anybody other than those of us with d in our families really get your above statement. I am often feeling like such a loser at the kid's preschool when I sign up for something but know that what'll get done is nothing like what I wish I had the energy to do. When I can barely roll out of bed in the morning and it's completely due to exhaustion, not depression. When I just wish others would stop talking to me about d for just one day so that I could stop biting my tongue.<br />Thanks for writing this...as lonely as I feel it does help me tremendously to know all of you ladies (and some gentlemen) around the world that are dealing with the same situations. (sorry for the novel!)Sarahhttps://www.blogger.com/profile/03210820513382353417noreply@blogger.comtag:blogger.com,1999:blog-6177432865376147686.post-75600970863201799382011-03-04T12:26:28.409-05:002011-03-04T12:26:28.409-05:00You said it perfectly Reyna. You have completely ...You said it perfectly Reyna. You have completely captured how I am feeling lately. I miss that part of me and wonder if she will ever be back.<br /><br />And the hurt I feel for Elise cannot even be put into words. It is all too much sometimes.Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.com