At about 3pm, the end of the school day, a few days ago... I received a call from Joe's school nurse. She notified me of a recent low; he treated. He left school without re-checking his blood glucose; he didn't want to miss his ride home.
'Ok...so your telling me to call him and make sure he makes it home alive (laughter) ... and if he doesn't, I won't hold you responsible.' Laughter closed the conversation between Joe's school nurse and I.
These are the things you say, cuz they are kinda true. He's meandering the community, alone...sometimes low. At times, I just gotta have blind faith that he'll be alright. He knows what to do. I have taught him well. And. I also realize..there could be times, he may not be ok. There are no guarantees with anything in this life; certainly not with t1d.
I called him.
'You ok?'
'Yeah. I'm 120s. I didn't want to miss my ride..'
Conversations with the school nurse while dealing with the day-in-the-life.
Monday, January 16, 2017
Tuesday, January 3, 2017
Meatloaf
 |
| Meatloaf pic added for comic relief. |
His plan; take a 1/3 of the loaf to school for lunch each day over the next few days.
We no longer use the "daily log".
We transitioned to a scrap of paper for carb counts; he says he doesn't need it, but it gives me some sense of security.
A less micro-managed day-in-the-life.
Monday, January 2, 2017
D'straction
It distracts him multiple times a day. Prior to eating a blood glucose is checked, carbs are counted, insulin is dispensed.
It distracts him nightly, as he hopes to wake the next morning.
It distracts him when he needs to sip juice, as he sleeps.
It distracts him when he gets left behind because he needs to do a check, change a pump site, or consume sugar.
It distracts him when he wants to be active. It must be taken into consideration every time he plans to exert himself physically. It must be cared for, or his ability to participate could be hindered by a low.
It distracts him every few days, as he needs to load his pump, prep his skin, and pierce his body to place a new site.
Does he complain about this "distraction"? Rarely. Does he feel sorry for himself? Never.
So, I guess it should not have surprised me; his reaction.
A few weeks ago, a couple of friends approached me. Their children, classmates of Joe's, had said a teacher stated...in front of Joe and his peers...'Joe, your diabetes is a distraction to the class.' This was during a period of incessant lows, a period of sleepless nights, a period of frequent pump adjustments...and a period of 'I just don't have it in me to be "that family" in dealing with the school system right now.' I asked my friends to let the principal know about the event.
I then discussed the issue with Joe.
He confirmed this indeed had happened. He didn't give it much thought. He was not bothered by it in the least. His response....'the teacher is right...it is a distraction.'
Who would know any better the distractions this demanding, unrelenting disease causes on an hour-to-hour, day-to-day basis...than Joe?
Hoping ... just like for everything else that is "atypical" in our society...that respect, acceptance, and empathy are demonstrated for the day-in-the-life.
It distracts him nightly, as he hopes to wake the next morning.
It distracts him when he needs to sip juice, as he sleeps.
It distracts him when he gets left behind because he needs to do a check, change a pump site, or consume sugar.
It distracts him when he wants to be active. It must be taken into consideration every time he plans to exert himself physically. It must be cared for, or his ability to participate could be hindered by a low.
It distracts him every few days, as he needs to load his pump, prep his skin, and pierce his body to place a new site.
Does he complain about this "distraction"? Rarely. Does he feel sorry for himself? Never.
So, I guess it should not have surprised me; his reaction.
A few weeks ago, a couple of friends approached me. Their children, classmates of Joe's, had said a teacher stated...in front of Joe and his peers...'Joe, your diabetes is a distraction to the class.' This was during a period of incessant lows, a period of sleepless nights, a period of frequent pump adjustments...and a period of 'I just don't have it in me to be "that family" in dealing with the school system right now.' I asked my friends to let the principal know about the event.
I then discussed the issue with Joe.
He confirmed this indeed had happened. He didn't give it much thought. He was not bothered by it in the least. His response....'the teacher is right...it is a distraction.'
Who would know any better the distractions this demanding, unrelenting disease causes on an hour-to-hour, day-to-day basis...than Joe?
Hoping ... just like for everything else that is "atypical" in our society...that respect, acceptance, and empathy are demonstrated for the day-in-the-life.
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