I'm not sure if isolation quite describes
it. I suppose it is a feeling of loneliness and of feeling misunderstood. Today, I didn't feel that
way. Today, I felt "got". Today, my eyes teared up as I read an email
from one of Joe's teachers. This email was not in response to any
recent issues. It was an unexpected email of praise for Joe.
A portion:
'I
can only imagine how challenging it is to live each day with diabetes,
and the impacts it has on Joe's personal and academic life. And, as if
managing the health aspects of it isn't enough in itself, he also has to
learn how to advocate for himself and build new coping skills to manage
it's impact on all aspects of his life. I see so much growth in these
areas as well.'
The
blood sugar checking, the carb counting, and the insulin dosing are one
thing. Sure, at times, the numbers cause physical discomfort. Yes,
the management, the needles hurt. The thing about diabetes is... the
actual disease and the management are so enmeshed and interconnected
throughout our days and our nights that it is impacted by just about
everything; it impacts just about everything.
Proud of Joe and how he handles his day-in-the-life.
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